What do say to people when they try to "help" with kind words of "wisdom".

We have been working so hard over the last three months to come to terms with what has happened. I have to admit that the only way I can do it is to take each day at a time. Thinking about the future does me no good at the moment. So of course I come across as very bubbly and positive, because Daniel is well. I can't see the point in ruining all our nice days together by being down about what might or might not be. I'm sure that anyone reading this who has an idea of what could be in store for us would understand.

Why then do people feel the need to point out to me that I should be prepared for trouble ahead, because my husband has a progressive illness? I obviously know this. My mother has it. I worked in the care sector and provided care for people who have very severe symptoms. Do they honestly think that if I spent time crying into the sofa in the small hours of the morning now, that it would somehow make it better if it does one day happen like they say?

I need to find a nice way to let them know that this only makes things worse. Maybe a similar thing would work for those well meaning people who say, "oh I know what you mean. My husband gets pins and needles sometimes".